The public conversation has shifted about the biopsychosocial model of myalgic encephalomyelitis (ME; formerly known as chronic fatigue syndrome) in ways that will not be readily reversed.
Patients writing about their health condition were abused by a peer reviewer and silenced by The BMJ
Should patients submitting manuscripts concerning health conditions provide proof of their diagnoses, such as medical records or letters from their physicians? Should The BMJ apologize to these patients and their academic collaborator co-authors, given that no such apology has been forthcoming from the Action Editor?
What should be done about the MEGA (ME/CFS Epidemiology and Genetics Alliance) project? Concerns and response
The MEGA (ME/CFS Epidemiology and Genetics Alliance) promises to be an extremely important scientific project, but important issues remain before patients can comfortably participate.
Simon Wessely's continued praise of PACE chronic fatigue syndrome trial suggest he is out of touch with current standards for clinical trials.
Updated May 22, 2016. I have added an opening summary, as well as a few links for readers who may want to learn more about IBS as a physical health problem about which we are learning a lot, not a mental health issue. Irritable bowel syndrome (IBS) has symptoms in common with other physical conditions. […]
Updated May 7, 2016 I have also now responded to Sir Simon Wessely ‘s comment on Twitter about this post. I invite a further reply from him. Soon there may be a renewed call for an investigation of misconduct by famous UK psychologist Hans Eysenck. What happened the last time reflects on the ability of […]
The title is my interpretation of the implications of some announcements now appearing in British media. There are more forthcoming, but here is a place to start: Press Gazette: Success for hands-off FoI campaign as government promises to leave the act alone BBC News: Freedom of Information charges ruled out after review BBC News: FOI […]
Repeated signals that The BMJ is moving forward while editors of other key medical journals try to undermine data sharing. Institutions are stiffening their resistance to release of the promised PACE trial data from the PLOS One article. This threatens to splinter the movement for routine data sharing. But The BMJ continues to support for […]
Further insights into war against data sharing: Science Media Centre’s letter writing campaign to UK Parliament
My requesting the PACE trial data is much simpler than it is being portrayed. The PACE investigators promised the data would be available upon request as a condition for publishing in PLOS One. No one forced Peter White and colleagues to publish in an open access journal committed to data sharing, but by doing so […]