Quick Thoughts

Appeal to NICE concerning the Guideline Committee for ME/CFS

"Anyone can sign. Please do. The letter is going off with a couple of dozen signatures, but the petition is open to all."

A patient who chooses to live reacts to one who chose to die

A last blog post from a patient long suffering with myalgic encephalomyelitis/chronic fatigue syndrome chose to end her life attracted a lot of attention. Here is a response from a patient who chooses to live and try to inspire others in that choice.

A sudden reversal of fortune for the biopsychosocial model of illness

The public conversation has shifted about the biopsychosocial model of myalgic encephalomyelitis (ME; formerly known as chronic fatigue syndrome) in ways that will not be readily reversed.

Carly Maryhew’s Open letter to TEDxBristol regarding Esther Crawley’s “Disrupting Your View of ME” presentation

Calling out another example of TEDx talks falling dreadfully short of their advertised “Only good science.”

Coyne of the Realm’s open letter to the National Health and Research Medical Centre (NHMRC) of Australia

To put it bluntly:  detection and diagnosis, as well as research and public policy concerning Myalgic Encephalomyelitis (ME) in Australia are a disaster. There is a high likelihood of the situation becoming worse.

No, seats on the US Institute of Medicine advisory committees are not for sale, despite what the Dutch Parliament was told

How the Executive Director of the Health and Medicine Division of the IoM responded to Professor Pim van Gool, the President of the Dutch Health Council disparaging the reputation of the IoM in testimony to the Dutch Parliament.

Unethical: Why Bristol University SMILE trial should not have been conducted with chronically ill children

If it should have been conducted at all, the first clinical trial of Lightning Process should not have been conducted with chronically ill children. Safety and efficacy had neither been established with adults, nor healthy children.

CDC – Don’t just discreetly change recommendations for treating chronic fatigue syndrome, publicize the changes!

  No one is going to notice important changes to Center for Disease Control recommendations for treating chronic fatigue syndrome unless explanations are often and disseminated. Unless you stumbled on it by accident, you had to be a routine watcher of the CDC website to have noticed a discrete last summer in the agency’s recommendations […]

Bristol University should start cleaning up its clinical trial registries by publishing two psychosocial intervention studies

A story in the feisty Bristol Cable revealed Bristol University ignores its responsibilities to publish results of clinical trials. A follow up story announced the university’s pledge to remedy the situation. The investigation of hidden data excluded psychosocial intervention trials. But here are two trials for which publication is overdue.

A dog ate the “fishy business” data for article in Science : What can be done?

Actually, not a dog, but it is an equally lame story: A thief allegedly made off with the only copy of the data from study critics claim never happened. What can be done?

Conflict of interest in manuscript peer-review: Expert opinions

Discussion of a recent court case concerning a peer reviewer who failed to disclose a conflict of interest has broader application.